Daniel's Stuff

I write code

Month: April 2011

Sadness doesn’t even come close

My boy is going to die soon.  He has been diagnosed with a degenerative brain disorder.  He is almost 4 now and we will be “lucky” if he sees 6 years old.  There are is no cure.  All we can do is try to keep him comfortable.

I alternate between numbness and weeping.  He’s such a happy little guy and he doesn’t deserve this.  It is a horrible disease.
We’re thinking of getting him a Pleo to play with as he loves dinosaurs.  I would be interested in hearing from people who have one to see if it is worth getting one for a small child.